
Медицинские вопросы и проблемы подростков, больных муковисцидозом
406
Raymond NC, Chang PN, Crow SJ et al. Eating disorders in patients with cystic fibrosis. J Adolesc 2000; 23:359-63
407
DS. Anorexia nervosa and cystic fibrosis: a case report. Int J Eat Disord 1988;7:433-7
408
Gilchrist FJ, Lenney W. Distorted body image and anorexia complicating cystic fibrosis in an adolescent. J Cyst Fibros 2008; 7;437-9
409
Pumariega AJ, Pursell J, Spock A, Jones JD. Eating disorders in adolescents with cystic fibrosis. J Am Acad Child Psychiatry 1986; 25:269-75
410
Shearer JE, Bryon M. The nature and prevalence of eating disorders and eating disturbance in adolescents
411
Duff AJ, Wolfe SP Dickson C, Conway SP Brownlee KG. Feeding behaviour problems in children with cystic fibrosis in the UK: prevalence and comparison with healthy controls. J Pediatr Gastroenterol Nutr 2003; 36:443-7
412
Bryon M, Shearer J, Davies H. Eating disorders and disturbances in children and adolescents with cystic fibrosis. Children's Health Care 2008; 37:67-77
413
Shearer JE, Bryon M. The nature and prevalence of eating disorders and eating disturbance in adolescents
414
Abbott J, Morton AM, Musson H et al. Nutritional status, perceived body image and eating behaviours in adults with cystic fibrosis. Clin Nutr 2007; 26:91-9
415
Kastner-Cole D, Palmer CNA, Ogston SA, Mehta A, Mukhopadhyay S. Overweight and obesity in AF508 homozygous cystic fibrosis. J Pediatr2005; 147:402-4
416
Hagan JF, Shaw JS, Duncan PM, eds. Bright futures: guidelines for health supervision of infants, children, and adolescents. 3rd edition. Elk Grove Village, IL: American Academy of Pediatrics, 2008
417
Friend S, Bauer KW, Madden TC, Neumark-Sztainer D. Self-weighing among adolescents: associations with body mass index, body satisfaction, weight control behaviors, and binge eating. J Am Diet Assoc 2011; 112:99-103
418
Pearson N, Williams L, Crawford D, Ball K. Maternal and best friends' influences on meal-skipping behaviours. Br J Nutr 2012; 31:1-7
419
Leverton RM. The paradox of teenage nutrition. J Am Diet Assoc 1968; 53:13-16
420
Michel SH, Maqbool A, Hanna M et al. Nutrition management of pediatric patients who have cystic fibrosis. Pediatr Clin North Am 2009; 56:1123-11
421
Stallings VA, Stark LJ, Robinson KA et al. Evidence-based practice recommendations for nutrition-related management of children and adults with cystic fibrosis and pancreatic insufficiency: results of a systematic review. J Am Diet Assoc 2008; 108:832-9
422
Australasian clinical practice guidelines for nutrition in cystic fibrosis. 2005. Available at: http://www.cysticfibrosis.org.au/pdf/CF_Nutrition_Guidelines.pdf. Accessed October 2012
423
Sinaasappel M, Stern M, Littlewood J et al. Nutrition in patients with cystic fibrosis: a European Consensus. J Cyst Fibros 2002; 1:51-75
424
Kerem E, Conway S, Elborn S et al. Standards of care for patients with cystic fibrosis: a European consensus J Cyst Fibros 2005; 4:7-26
425
White H, Morton AM, Peckham DG et al. Dietary intakes in adult patients with cystic fibrosis – do they achieve guidelines? J Cyst Fibros 2003; 3:1-7
426
Poustie VJ, Russell JE, Watling RM et al. Oral protein energy supplements for children with cystic fibrosis: CALICO multicentre randomized controlled trial. BMJ 2006; 332:632-6
427
Walters MP Kelleher J, Gilbert J et al. Clinical monitoring of steatorrhoea in cystic fibrosis. Arch Dis Child 1990;63:99-102
428
Stallings VA, Starck LJ, Robinson KA, Feranchak AP Quinton Hb. Evidence- based practice recommendations for nutrition-related management of children and adults with cystic fibrosis and pancreatic insufficiency: results of a systematic review. J Am Diet Assoc 2008; 108:832-9
429
Powers SW, Jones JS, Ferguson KS, Piazza-Waggoner C, Daine C, Acton JD. Randomized clinical trial of behavioural and nutritional treatment to improve energy intake and growth in toddlers and preschoolers with cystic fibrosis. Pediatrics 2005; 116:1442-50
430
Starck LJ, Opipari-Arrigan L, Quittner AL, Bean J, Powers SW. The effects of an intensive behaviour and nutrition intervention compared to standard of care on weight outcomes in CF Pediatr Pulmonol 2011;46:31-5
431
Leonard A, Davis E, Rosenstein BJ et al. Description of a standardized nutrition classification plan and its relation to nutritional outcomes in children with cystic fibrosis. J Pediatr Psychol 2010;35:6-13
432
Giedd JN, Blumenthal J, Jeffries NO et al. Brain development during childhood and adolescence: a longitudinal MRI study. Nat Neurosci 1999;2:861-3
433
Vandenbranden SL, McMullen A, Schechter MS et al. Lung function decline from adolescence to young adulthood in cystic fibrosis. Pediatr Pulmonol 2012;47:135-43
434
Engstrom I. Inflammatory bowel disease in children and adolescents: mental health and family functioning. J Pediatr Gastroenterol Nutr 1999; 28:S28-33
435
Suris JC, Michaud PA, Viner R. The adolescent with a chronic condition. Part 1: developmental issues. Arch Dis Child 2004; 89:938-42
436
Modi AC, Driscoll KA, Montag-Leifling K, Acton JD. Screening for symptoms of depression and anxiety in adolescents and young adults with cystic fibrosis. Pediatr Pulmonol 2011;46:153-9
437
Ernst MM, Johnson MC, Stark LJ. Developmental and psychosocial issues in cystic fibrosis. Child Adolesc Psychiatr Clin N Am 2010; 19:263-83
438
Vermiere E, Hearnshaw H, Van Royen P et al. Patient adherence to treatment: three decades of research. A comprehensive review. J Clin Pharm Ther 2001; 26:331-42
439
George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32
440
Vermiere E, Hearnshaw H, Van Royen P et al. Patient adherence to treatment: three decades of research. A comprehensive review. J Clin Pharm Ther 2001; 26:331-42
441
Yeo M, Sawyer S. ABC of adolescence: chronic illness and disability. BMJ 2005;330:721-3
442
McEwan FA, Hodson ME, Simmons NJ. The prevalence of "risky behaviour" in adults with cystic fibrosis. J Cyst Fibros 2012; 11:56-8
443
Graetz B, Shute R, Sawyer S. An Australian study of adolescents with cystic fibrosis: perceived supportive and nonsupportive behaviours from families and friends and psychological adjustment. J Adolesc Health 2000; 26:64-9
444
Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9
445
Bregnballe V, Schirtz PO, Lomborg K. Parenting adolescents with cystic fibrosis: the adolescents' and young adults' perspectives. Patient Prefer Adherence 2011; 5:563-70
446
McEwan FA, Hodson ME, Simmons NJ. The prevalence of "risky behaviour" in adults with cystic fibrosis. J Cyst Fibros 2012; 11:56-8
447
lies N, Lowton K. What is the perceived nature of parental care and support for young people with cystic fibrosis as they enter adult health services? Health Soc Care Commun 2010; 18:21-9
448
DeVore ER, Ginsberg KR. The protective effects of good parenting on adolescents. Curr Opin Pediatr 2005; 17:460-5
449
Herzer M, Umfress K, Aljadeff G et al. Interactions with parents and friends among chronically ill children: examining social networks. J Dev Behav Pediatr 2009; 30:499-508
450
DeVore ER, Ginsberg KR. The protective effects of good parenting on adolescents. Curr Opin Pediatr 2005; 17:460-5
451
Twyman KA, Saylor CF, Saia D et al. Bullying and ostracism experiences in children with special health care needs. J Dev Behav Pediatr 2010; 31:1-8
452
Herzer M, Umfress K, Aljadeff G et al. Interactions with parents and friends among chronically ill children: examining social networks. J Dev Behav Pediatr 2009; 30:499-508
453
Steinfield C, Ellison NB, Lampe С Social capital and college students' use of online social network sites. J Appl Dev Psychol 2008; 29:434-45
454
Olsson CA, Boyce MF, Toumbourou JW, Sawyer S. The role of peer support in facilitating psychological adjustment to chronic illness in adolescence. Clin Child Psychol Psychiatry 2005; 10:78-87
455
Besier T, Goldbeck L. Growing up with cystic fibrosis: achievement, life satisfaction and mental health. Qual Life Res 2012. (In press) DOI: 10.1007/ s11136-011-0096-0
456
Engstrom I. Inflammatory bowel disease in children and adolescents: mental health and family functioning. J Pediatr Gastroenterol Nutr 1999; 28:S28-33
457
Yeo M, Sawyer S. ABC of adolescence: chronic illness and disability. BMJ 2005;330:721-3
458
Sawyer S, Drew S, Yeo MS, Britto MT Adolescents with a chronic condition: challenges living, challenges treating. Lancet 2007; 369:1481-9
459
Yeo M, Sawyer S. ABC of adolescence: chronic illness and disability. BMJ 2005;330:721-3
460
Demars N, Uluer A, Sawicki GS. Employment experiences among adolescents and young adults with cystic fibrosis. Disabil Rehabil 2011; 33:922-6
461
Casier A, Goubert L, Theunis M et al. Acceptance and well-being in adolescents and young adults with cystic fibrosis: a prospective study. J Pediatr Psychol 2011; 36:476-87
462
Grieve JA, Tluczek A, Racine-Gilles CN, Laxova A, Albers AA, Farrell PM. Associations between academic achievement and psychological variables in adolescent with cystic fibrosis. J Sch Health 2011; 81713-20
463
Engstrom I. Inflammatory bowel disease in children and adolescents: mental health and family functioning. J Pediatr Gastroenterol Nutr 1999; 28:S28-33
464
Yeo M, Sawyer S. ABC of adolescence: chronic illness and disability. BMJ 2005;330:721-3
465
Laborde-Casterot H, Donnay C, Chapron J et al. Employment and work disability in adults with cystic fibrosis. J Cyst Fibres 2012; 11:137-43
466
JK. Tele-What? It's time to re-think the industry's terms. Telehealth World 2008:(7)
467
Wuorenma JK. Tele-What? It's time to re-think the industry's terms. Telehealth World 2008:(7)
468
Hardisty AR, Peirce SC, Preece A et al. Bridging two translation gaps: a new informatics research agenda for telemonitoring of chronic disease. Int J Med Inform 2011; 80734-44
469
Coleman MT, Newton KS. Supporting self-management in patients with chronic illness. Am Fam Physician 2005;72:1503-10
470
McEwan FA, Hodson ME, Simmons NJ. The prevalence of "risky behaviour" in adults with cystic fibrosis. J Cyst Fibros 2012; 11:56-8
471
McEwan FA, Hodson ME, Simmons NJ. The prevalence of "risky behaviour" in adults with cystic fibrosis. J Cyst Fibros 2012; 11:56-8
472
George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32
473
Emery D, Hayes BJ, Cowan AM. Telecare delivery of health and social care information. Health Informatics J 2002; 8:29-33
474
McEwan FA, Hodson ME, Simmons NJ. The prevalence of "risky behaviour" in adults with cystic fibrosis. J Cyst Fibros 2012; 11:56-8
475
George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32
476
George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32
477
Emery D, Hayes BJ, Cowan AM. Telecare delivery of health and social care information. Health Informatics J 2002; 8:29-33
478
Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9
479
Sarfaraz S, Sund Z, Jarad N. Realtime, once-daily monitoring of symptoms and FEV in cystic fibrosis patients – a feasibility study using a novel device. Clin Respir J 2010; 4:74-82
480
Jarad NA, Sund ZM. Telemonitoring in chronic obstructive airway disease and adult patients with cystic fibrosis. J Telemed Telecare 2011; 17:127-32
481
Sarfaraz S, Sund Z, Jarad N. Realtime, once-daily monitoring of symptoms and FEV in cystic fibrosis patients – a feasibility study using a novel device. Clin Respir J 2010; 4:74-82
482
Sarfaraz S, Sund Z, Jarad N. Realtime, once-daily monitoring of symptoms and FEV in cystic fibrosis patients – a feasibility study using a novel device. Clin Respir J 2010; 4:74-82
483
Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9
484
Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9
485
Emery D, Hayes BJ, Cowan AM. Telecare delivery of health and social care information. Health Informatics J 2002; 8:29-33
486
Sarfaraz S, Sund Z, Jarad N. Realtime, once-daily monitoring of symptoms and FEV in cystic fibrosis patients – a feasibility study using a novel device. Clin Respir J 2010; 4:74-82
487
Van Allen J, Davis AM, Lassen S. The use of telemedicine in pediatric psychology: research review and current applications. Child Adolesc Psychiatr Clin N Am 2011; 20:55-66
488
George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32
489
McEwan FA, Hodson ME, Simmons NJ. The prevalence of "risky behaviour" in adults with cystic fibrosis. J Cyst Fibros 2012; 11:56-8
490
Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9
491
Nikander K, Denyer J, Dodd M et al. The Adaptive Aerosol Delivery system in a telehealth setting: patient acceptance, performance and feasibility. J Aerosol Med Pulm Drug Deliv2010;23 Suppl 1:S21-7
492
George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32
493
Cummings E, Hauser J, Cameron-Tucker H et al. Enhancing self-efficacy for self-management in people with cystic fibrosis. Stud Health Technol Inform 2011; 169:33-7
494
George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32
495
Bregnballe V, Schirtz PO, Lomborg K. Parenting adolescents with cystic fibrosis: the adolescents' and young adults' perspectives. Patient Prefer Adherence 2011; 5:563-70
496
Van Allen J, Davis AM, Lassen S. The use of telemedicine in pediatric psychology: research review and current applications. Child Adolesc Psychiatr Clin N Am 2011; 20:55-66
497
Cummings E, Hauser J, Cameron-Tucker H et al. Enhancing self-efficacy for self-management in people with cystic fibrosis. Stud Health Technol Inform 2011; 169:33-7
498
Nikander K, Denyer J, Dodd M et al. The Adaptive Aerosol Delivery system in a telehealth setting: patient acceptance, performance and feasibility. J Aerosol Med Pulm Drug Deliv2010;23Suppl 1:S21-7
499
Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9
500
Cox NS, Alison JA, Rasekaba T Holland AE. Telehealth in cystic fibrosis: a systematic review. J Telemed Telecare 2012; 18:72-8
501
Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9
502
Sarfaraz S, Sund Z, Jarad N. Realtime, once-daily monitoring of symptoms and FEV in cystic fibrosis patients – a feasibility study using a novel device. Clin Respir J 2010; 4:74-82
503
Archer N, Fevrier-Thomas U, Lokker C, McKibbon KA, Straus SE. Personal health records: a scoping review. J Am Med Inform Assoc 2011;18:515-22
504
Dziuban EJ, Saab-Abazeed L, Chaudhry SR, Streetman DS, Nasr SZ. Identifying barriers to treatment adherence and related attitudinal patterns in adolescents with cystic fibrosis. Pediatr Pulmonol 2010; 45:450-8
505
Giedd JN, Blumenthal J, Jeffries NO et al. Brain development during childhood and adolescence: a longitudinal MRI study. Nat Neurosci 1999;2:861-3
506
Vandenbranden SL, McMullen A, Schechter MS et al. Lung function decline from adolescence to young adulthood in cystic fibrosis. Pediatr Pulmonol 2012;47:135-43
507
Engstrom I. Inflammatory bowel disease in children and adolescents: mental health and family functioning. J Pediatr Gastroenterol Nutr 1999; 28:S28-33
508
Suris JC, Michaud PA, Viner R. The adolescent with a chronic condition. Part 1: developmental issues. Arch Dis Child 2004; 89:938-42
509
Modi AC, Driscoll KA, Montag-Leifling K, Acton JD. Screening for symptoms of depression and anxiety in adolescents and young adults with cystic fibrosis. Pediatr Pulmonol 2011;46:153-9
510
Ernst MM, Johnson MC, Stark LJ. Developmental and psychosocial issues in cystic fibrosis. Child Adolesc Psychiatr Clin N Am 2010; 19:263-83
511
Engstrom I. Inflammatory bowel disease in children and adolescents: mental health and family functioning. J Pediatr Gastroenterol Nutr 1999; 28:S28-33
512
Vermiere E, Hearnshaw H, Van Royen P et al. Patient adherence to treatment: three decades of research. A comprehensive review. J Clin Pharm Ther 2001; 26:331-42
513
George M, Rand-Giovannetti D, Eakin MN et al. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with cystic fibrosis. J Cyst Fibros 2010; 9:425-32
514
Yeo M, Sawyer S. ABC of adolescence: chronic illness and disability. BMJ 2005;330:721-3
515
McEwan FA, Hodson ME, Simmons NJ. The prevalence of "risky behaviour" in adults with cystic fibrosis. J Cyst Fibros 2012; 11:56-8
516
Graetz B, Shute R, Sawyer S. An Australian study of adolescents with cystic fibrosis: perceived supportive and nonsupportive behaviours from families and friends and psychological adjustment. J Adolesc Health 2000; 26:64-9
517
Guion K, Mrug S. The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. J Clin Psychol Med Settings 2012; 19:262-9
518
Bregnballe V, Schirtz PO, Lomborg K. Parenting adolescents with cystic fibrosis: the adolescents' and young adults' perspectives. Patient Prefer Adherence 2011; 5:563-70
519
lies N, Lowton K. What is the perceived nature of parental care and support for young people with cystic fibrosis as they enter adult health services? Health Soc Care Commun 2010; 18:21-9
520
DeVore ER, Ginsberg KR. The protective effects of good parenting on adolescents. Curr Opin Pediatr 2005; 17:460-5
521
DeVore ER, Ginsberg KR. The protective effects of good parenting on adolescents. Curr Opin Pediatr 2005; 17:460-5
522
Twyman KA, Saylor CF, Saia D et al. Bullying and ostracism experiences in children with special health care needs. J Dev Behav Pediatr 2010; 31:1-8
523
Steinfield C, Ellison NB, Lampe С Social capital and college students' use of online social network sites. J Appl Dev Psychol 2008; 29:434-45
524
Olsson CA, Boyce MF, Toumbourou JW, Sawyer S. The role of peer support in facilitating psychological adjustment to chronic illness in adolescence. Clin Child Psychol Psychiatry 2005; 10:78-87
525
Besier T, Goldbeck L. Growing up with cystic fibrosis: achievement, life satisfaction and mental health. Qual Life Res 2012. (In press) DOI: 10.1007/ s11136-011-0096-0
526
Sawyer S, Drew S, Yeo MS, Britto MT Adolescents with a chronic condition: challenges living, challenges treating. Lancet 2007; 369:1481-9
527
Demars N, Uluer A, Sawicki GS. Employment experiences among adolescents and young adults with cystic fibrosis. Disabil Rehabil 2011; 33:922-6
528
Casier A, Goubert L, Theunis M et al. Acceptance and well-being in adolescents and young adults with cystic fibrosis: a prospective study. J Pediatr Psychol 2011; 36:476-87
529
Grieve JA, Tluczek A, Racine-Gilles CN, Laxova A, Albers AA, Farrell PM. Associations between academic achievement and psychological variables in adolescent with cystic fibrosis. J Sch Health 2011; 81713-20